Ieva Roze

• Advanced Immunotherapy: Specialized in the administration of facilitated subcutaneous immunoglobulins (fSCIg), specifically HyQvia.
• Clinical Training & Education: Provided comprehensive one-on-one training for patients and caregivers on self-administration techniques, aseptic protocols, and infusion pump management to enable safe home-based therapy.
• Patient Monitoring: Conducted clinical assessments and monitored patients for adverse reactions during the initial phases of therapy, ensuring high safety standards in an outpatient setting.
• Care Coordination: Managed long-term home care plans, providing ongoing support and clinical guidance to empower patients in their treatment journey.

• Conducted patient assessments and monitored clinical trial participants for safety and compliance.
• Administered investigational medications and collected relevant data for ongoing clinical research studies.
• Documented clinical findings and maintained accurate records in compliance with regulatory guidelines.
• Facilitated communication between researchers, participants, and regulatory bodies to optimise trial efficiency.
• Administered oral, topical and intravenous medications based on patient symptomatology and treatment plans.

• Genetic Testing & Sample Collection: Performing specialized sample collection for Fabry, Pompe, and Gaucher disease screening, adhering to Archimed Life laboratory protocols.
• Diagnostic Platform Management: Managing patient registration and clinical data entry in the Archimed Life system to facilitate genetic analysis.
• Logistics & Shipment Coordination: Organizing the secure preparation and international shipment of biological samples to specialized laboratories, ensuring compliance with medical transport and biosafety regulations.

• Data Entry & Management: Accurately inputting and maintaining clinical and genetic patient data within specialized registry platform TREAT-NMD to ensure a high-quality database.
• Data Quality & Verification: Verifying the accuracy of patient-reported information against medical records and ensuring compliance with international core datasets and standards.
• Patient Communication & Engagement: Responding to inquiries regarding the registration process, providing updates on new clinical research, and ensuring participants regularly update their profiles.
• Privacy & Ethical Oversight: Ensuring patient data pseudonymization prior to researcher access and maintaining rigorous compliance with informed consent and data protection protocols (GDPR).

Center for Rare Neurological Diseases

• Educated patients and families on disease management and preventive care, enhancing their understanding of health conditions.
• Preparation and administration of intravenous and subcutaneous immunoglobulin infusions in patients with rare diseases.
• Patient education and training for self-administration of biological medications.
• Collaborated with multidisciplinary teams to facilitate holistic patient care and enhance recovery outcomes.

• Administered medications and treatments to children while monitoring vital signs and health conditions.
• Educated families about child health, developmental milestones, and appropriate care practices.
• Provided emotional support and comfort to children and families during hospital stays and medical procedures.
• Administered oral, topical and intravenous medications based on patient symptomatology and treatment plans.

• Assisting surgical manipulations and laser procedures.
• Educated patients on skincare routines, sun protection, and management of dermatological conditions to promote health.
• Administered prescribed medications and topical therapies, closely monitoring patient responses and progress.